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Writer's picturekylie Leeson

20 Things only people with ITP would understand


I'm just going to jump straight into this one!



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1) Having ITP (immune thrombocytopenic purpura) means you have low platelets. The stuff that sticks together and clots the blood when you cut yourself



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2) Petechiae are spots on your body that are caused by low platelets



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3) Mysterious leg bruise is no longer a laughing joke about how clumsy you must be but now an actual cause for concern


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4) No you cannot take aspirin or ibuprofen when you have a headache


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5) Your platelets do not provide advanced notice of when they are going to go up or down


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6) Not all treatments for ITP work for every ITP patient


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7) Although some people go into remission there is no cure


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8) Some of the conventional treatments have worse side effects than the condition itself


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9) Your lifestyle has to change and you now need to be more aware of your body


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10) Contact sports are a big no no


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11) Fatigue is a real symptom


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12) Constant heavy menstrual flow from ITP can lead to anemia


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13) Yes you have to attend all your checkup appointments


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14) People think you are overreacting but having ITP is a serious health concern


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15) Travelling with ITP can be risky


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16) Steroids make you fat


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17) Having a too high platelet count can cause other concerns for your health


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18) ITP is not cancer


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19) You may have to have your spleen removed but that will not guarantee that you will no longer have ITP


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20) Often you don't know how shitty you really feel until you have an increase in your platelets and you feel fabulous



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