Yes, I am an ITP patient and I went snowboarding!
There are so many NO’s when you have ITP, a bleeding disorder where a simple bump can turn into an emergency trip to the ER.
All these NO’s can offset so much anxiety and furthermore, can make you feel deflated or that you are missing out. I personally, did not want to go to the snow and sit on the sidelines. That to me is not fun and is something I no doubt will have to do when I take my grandkids to the snow. However, for now, I am not that old, my body is still somewhat capable and there still is some life/fun left in me.
How am I supposed to teach my son to give things a go if I am always sitting on the sidelines? Do as I say and not as I do?
I get it through. It is totally reckless and a bad tumble or stack where I hit my head could be fatal. I could also hop in a car tomorrow and have a car accident.
Does this mean I should always be reckless with my health and not follow Doctor’s orders, NO…? But it does mean sometimes you just have to decide what you feel comfortable with. It is your body, your choice!
I am certain my doctor would disagree and be somewhat unpleased with my behavior – it is rather reckless. Nonetheless, I had a blast even with a few bad tumbles. At one stage, I completely winded myself and needed a minute to get back up. I also had a headache that night and got myself a little paranoid – but the headache has faded and I hardly have any bruises.
SNOW TRIP TIPS:
· Try to get your platelets checked before going to have an idea of where your platelets are at and the risk factors.
· Hire all necessary equipment for safety (this includes a helmet).
· Pack your prednisone, tranexamic acid, and first aid kit.
· I know it sounds better to be where people are not however; if you have an accident, you want to be where people are.
· Have fun and try to forget "what if’s"
· Take accountability and responsibility for your own health – if you have an accident don’t blame it on others – they didn’t force you to go
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